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Taz Valentine

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I am like how a good steak should be, rare.
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17 Dezember

Home (sick) For The Holidays

If it weren't for the fact that shallow television corporations advertise the life out of the holidays, I wouldn't have even noticed them coming.  It hardly feels like a Christmas for me since I've been secluded for so long.  It's been seven and a half months now.  More than half a year where I've done nothing but fight with cancer.  I've tried to distract myself by finding things to do such as writing, playing video games and watching anime, but no matter what I do the fact that I have cancer never leaves the back of my mind.  Every time I feel a slight pain or feel a bit different I have to worry about the fact that the cancer could be attacking me again, and that I could be on the verge of another "episode."  I can barely remember what it feels like to be healthy.  I don't know whether or not seven months can be considered a long time, but to me it feels like a lifetime.  It feels like a lifetime ago when I was just living a normal life, going to work, hanging out with friends, walking around like a normal person, and generally just living.  I used to think I was pretty miserable in my dull lifestyle, but now it would be a dream come true for me to upgrade to that miserable state.  Honestly, I'm sick of everything that's been happening.  I'm sick of the pills, the hospitals, the checkups, the constant physical swings, and the fact that my hands and feet are so numb that I can't do much of anything.  I'm just sick of being sick.
 
It's hard to say whether or not I've been able to keep my sanity after all this.  I mean I don't feel like I've lost my mind or anything, but then I realize that I've been so bored lately that I've resorted to doing things that show obvious signs of anxiety, such as labeling every single ID3 tag on ALL the music on my computer (26.2gb, 7000+ songs).  By the time I had realized how crazy it was I was already finished.  I'm 21 years old for god sakes.  Boredom can eat away at you much faster when you're young.  I'm supposed to be out partying and having fun at my age, not sitting around a TV and a computer day after day, and especially not spending every waking moment of every day worrying about nothing but my health and how everything I do affects it.  Everyone around me wants me to do nothing but exercise and eat healthy food until the day I get better, but unfortunately the human mind, especially mine, requires a certain amount of happiness.  Its funny how everyone around me has expert advice on everything that I SHOULD be doing to get better, but none of them really know how I feel or understand what I'm really going through.  I'm constantly reminding myself that everyone is just trying to help and that they want to see me get better, so I shouldn't get mad at them.
 
I can't help but wonder if I'll ever be the same as I was before I got sick.  It doesn't seem possible.  Realistically by the time I fully and truly recover will be a LONG time from now.  Even if they eliminate the cancer completely, which they aren't even sure they can do, I'll have to spend another half of a year trying to regain my old physical shape.  I can't help but sigh to myself when I think about these things.  It's not like I've given up or anything like that, I just think its depressing thinking about all the time I'm losing.  And then on top of that I have to consider all of the side effects that I bound to incur once I do get better.  Well the whole thing just sucks, but I already knew that I guess.
 
Well anyways, that might be my holiday rant this year.  Quite different from last year’s.  Last year I was complaining that I had too many places to be for the holidays.  Ironically this year I'm complaining about how I can't be anywhere for the holidays.  I guess life never gives you what you want.  I can't do any Christmas shopping this year, I can't go snowboarding, and I can't party on New Years.  I don't know what I'm going to do with myself this year.  If ever there is a day when I can say all this is truly behind me, I guess I'll finally have something to be grateful for on future holidays.
08 Dezember

Dominoes

Ok so since last entry there is a bit of catching up to do, I probably should've updated sooner but whatever.

The Appointment

So the dreaded doctor's appointment rolls along.  Surprisingly he had good news for me.  It turns out that with this Tumor Marker Scan they had determined that the cancer had shrunk down to about half.  So from around 60 000 to about 30 000.  Now what those numbers represent I really can't remember, however the point is that it shrunk about half.  He tells me that it is expected that after next cycle another half should be expected to drop.  I went home with this good news.

Old Times

That weekend I ended up going out with a couple friends of mine to a couple old hangouts.  First we stopped off at this Italian shop that we used to go to for late night meals, one of many late night meal locations that we had.  Granted we didn't go there as late as we normally would have, the experience was generally the same.  After that, we ended up dropping by the old coffee shop.  For those who don't know, the coffee shop was where I used to hang out for hours and hours at a time before I moved up here to the suburbs and well before I got sick.  I used to spend all my time there sitting, chatting, drinking coffee and smoking, not to mention it was around the corner from my house and open 24 hours a day so I could catch my nightly drunken bar fights whenever I couldn't sleep.  Shortly after I moved however they passed that smoking ban and the coffee shop became a place of desolation.  My friends no longer hang out there anymore, with the exception of a few who happen to pass by because they live nearby.  The smoking room has been converted into a used book store (why the hell the owner of the coffee shop would do something so stupid is beyond me), and they now close at 12am.  So basically all the smoking customers, which were about 95% of them, are gone.  I don't even know why the owner bothers keeping that store anymore.  Anyways it was sad to see my old hang out in such shambles considering I've had so many good times there, but I guess things are bound to change.

Episode One

On the following Tuesday I went in for chemotherapy.  Everything seemed to have gone smoothly just like every other time.  On the way home my mother and I had passed by a grocery and picked up some food and even then I seemed to be ok.  Then I get home to eat dinner I my breathing is a little short.  After dinner a little shorter.  I figure I go to my room and try and sit it off.  My mom had taken off to pick up my step dad from the train station and so I was left to sit it out alone.  Sitting it off doesn't work as my breath begins getting shorter.  By now I realize that this isn't normal.  I phone my mother who immediately comes home.  She calls the hospital to see what to do.  The hospital suggests we call emergency and have me checked out.  So that's what we do.  It felt like day one all over again, like the first day of cancer when I couldn't breathe and was rushed to the hospital.  911 emergency came and by then I was really short of breathe.  Moving me made it worse but they forced me out into the ambulance anyways which caused me to nearly suffocate.  They hooked my up to oxygen and sprayed me several times with an asthma puffer.  I managed to tell them that as long as I leaned forward that I could at least stabilize my breathing, and although they wouldn’t listen to me at first which made breathing extremely painful, they eventually let me sit forward.  I was able to normalize my breathing somewhat while riding in the ambulance.  By the time I got to the hospital I felt a little better.  The first hospital, the local hospital, the place where I had my first round of chemotherapy.  The last time I was here I was disgustingly sick.  I thought I'd never have to see this place again.  Then a funny thing happened.  As they were assessing me with x-ray and blood work, I sort of just got better.  Whatever had happened to me just went away.  My breathing went back to normal and I was fine.  The only explanation for this "episode" as everyone thereafter would call it, was that I probably had a reaction to something.  But since it went away, they figured I could go home.

The next day I was fine but we decided to call the chemo doctors to let them know what happened just in case.  They ended up requesting that during the next session of chemo I stay overnight just in case this was to happen again.

Chapter One Complete

The rest of the week I didn't do anything special.  I pretty much just hung around the house.  I did however manage to finish the first chapter of my story.

Episode Two

So I stayed last night at the hospital and as it turns out I did have some kind of reaction to the chemo.  I started to get short of breathe again about four hours after the administered the chemo drugs, however this time I was able to notice it so quickly that it never got the chance to turn into anything serious.  As soon as I mentioned it they hooked my up to a little oxygen and gave me a few sprays of a puffer and I was fine.  Next week I'll be staying overnight again just to make sure.  They told me this morning that the tumor marker scan has determined that my count has gone down to about 12 000.  Good news I guess.

Thoughts

It seems that every two or three weeks something comes up.  There's always some kind of new complication that causes a big scare.

The snow came right on the break of December this year.  I'm sure this would have been a great snowboarding season.

*sigh*

There is a saying that goes something like this:  "Time heals all wounds."

20 November

Snow

First off I would like to say that I am very happy at response I got for the last post.  I had hoped that that particular post would get a lot of reads and it certainly did.  I think I might've racked up over 250 page views on that post alone.  I would also like to thank everyone who responded or commented, the six that commented on the blog and all the others that made mention off to the side.  I think I'm starting to get over my fear that nobody reads this blog.
 
Today there is a light coating of snow on the rooftops.  Unlike most people, I actually prefer the winter, so you can imagine why the sight of snow is so pleasing to me.  Unfortunately though, this year I'm caught with this cancer and probably won't get to enjoy it.  Since I'm so weak right now and my recovery time, at best, will probably carry on through the winter, I probably won't get to go snowboarding this year.  I hate to say this, especially since everyone around me has been spending so much effort trying to keep me in a good mood, but that bums me out.  Snowboarding is one of my greatest passions and the thought of me missing out on a season for the first time in nine years, since I started snowboarding in 1997, well that is a bit depressing.  However I guess the half-full-glass version of me will have to just use this as motivation to fight for a quicker recovery.  *Sigh*  I hope I don't forget how to snowboard.....
 
These past couple of weeks have been rather bizarre for me.  My father somehow managed to put everything aside and come down to Canada to see me and spend time with me.  I must admit I didn't thiink he had it in him.  He has actually managed to put all his business aside for over two weeks now, and seems to genuinely care about my situation.  This may be the first time I've recieved any kind of fatherly affection from him, so you can imagine why it would be unusual for me.  Even stranger is the fact that my parents have been..........getting along.  I remember these two fought a divorce battle that lasted through my entire childhood and a couple years into my teens.  I remember I was so frustrated with it that it became the reason I started smoking at the age of 14.  And now this past couple of weeks I have been eating breakfast with both of them, going out with both of them, hanging out with them etc.  They have been talking to eachother like normal people, civilized conversations, even laughing at times with eachother.  I'm not quite sure I know how to handle it.  For a few silly seconds I almost felt as if I was getting a glimpse of what a real childhood might have been like.  It's a shame that it took such dire circumstances in order tobring my family together, but the point is that it's working.  My family seems to have gotten over all the grudges and stupid trivial matters to see a bigger picture and realize the importance of family and that makes me feel pretty good.  It's about time.
 
So I've done a few sessions of chemotherapy since returning from the hospital.  Nothing like before though.  This time it's just a light dose once a week.  So unlike before I'm not weak, nauseated and immobile afterwards.  I'm going to go see the doctor on Friday to see what is in store for me next, and find where I go from here.  Hopefully this time there is some good news for me.  I think I deserve some good news right now, after all that's happened.  Everyone, keep your fingers crossed.
06 November

Riding The Dragons Back

..........What an emotional roller coaster this past two weeks have been.  After the surgery on my chest and the removal of the tumour, everything was supposed to be over.  And it all started with a visit to the new doctor.  They had run a CT scan on me shortly after the surgery and it was discovered that at some point just before the surgery, the cancer had spread to my liver.  It was terrible news.  The doctor had said it to me in a way that made it seem like he didn't know what to do.  He had basically told me that he wasn't sure if there was anything he could do for me.  That was when it all started.  I began to lose hope.  For the first time in a long time, maybe even the few times in my whole life, I lost my composure and freaked out.  I thought that I was going to die... I thought that this was it, that my time was up and that this was the beginning of the end.  I was afraid to tell my mother about my doubts because the last thing I wanted was to worry her any more than she already was.  I was already accepting death.  Then shortly after that, my fears became reality.  One morning I woke up and there was an intensely sharp pain in my midsection which quickly grew into a violent stabbing pain in just a matter of hours.  Right then and there I had already known, the cancer was beginning to grow.  I thought, here it is, I'm within deaths grip now, it's almost over.  The pain got to the point where the only thing I could do was sit keeled over after several powerful painkillers and remain perfectly still.  An inch worth of movement would send a lightning bolt of pain through my midsection.  I couldn't lie down, stand up, walk, nothing.  When my mother discovered me in pain she immediately rushed me to the hospital.  I was barely able to get through the scan because I was in so much pain.  Results of the scan confirmed everything I already knew.  The tumour had grown significantly in size.  By then I think that I had already given up.

Once I got a room in the hospital, a miraculous thing happened.  My entire family came together.  I have always had an extremely large family, but between them there was much controversy, many feuds, and many distances, but for my sake they all came together.  Many of them weaped when they heard what was happening and it took all the strength of my being not to show them the ocean of tears I was holding back.  They all had the same thing to say to me, that they would not let me give up.  They told me that the entire family was giving me all the support they could possibly give.  I always knew that I loved my family, but then and there I realized just how much I love them and how much they loved me back.  And it was then and there that it happened.  I decided that I can't die.  Not here, not like this.  I was no longer fighting this battle for me, but for my whole family.  I wanted to live so that I could spend the rest of my life thanking them for all that they've done for me and paying them back for all their love and prayers.  They became my motivation, my will to live.

Then something like a miracle happened.  My cousin and her boyfriend came to visit me.  They told me that his older brother and become a disciple of a Tibetan monk for the past couple of years.  The monk is a holistic healer who travels around curing people of different sicknesses and diseases.  Sometimes curing hundreds of people in a single day.  The kind of thing that modern medicine always looks away from.  They told me many stories about how he used bizarre and unexplainable methods to heal people of different things, and that two have my cousins had gone to him themselves and seen it work with their own eyes.  He managed to cure my one cousin of asthma, and the other of carpel tunnel.  Now when it comes to me, I always told people that I was without religion, but the truth is my family has always been part of the Buddhist culture.  The only thing was that it sort of got lost with the coming of my generation, since we aren't born in Asia.  Nevertheless, they told me that they had mentioned my situation to the brother and that the brother wanted to come see me.  A couple days later he came.  It turns out that he had been visiting many sick people in hospitals and such and helping with many different kinds of severe cases.  One such case was literally bringing an 85 year old woman out of paralysis and into physiotherapy, a feat which even the doctors couldn't explain.  When he came to see me I couldn't even lie down to sleep.  I was keeled over the hospital food tray just sitting there in pain.  He started by showing me a few fairly simple breathing exercises.  And then he slowly helped me stand up and showed me a few stance techniques which were a bit strange.  It was like a true miracle.  Within a few hours he had lessened my pain.  He had done more for me in a few hours then two days worth of painkillers.  Nobody paid this man to come see me, nobody begged him, nobody sent him, he merely came out of the sheer goodness of his heart and soul.  And he kept coming.... Day after day for the next week he kept coming back to my hospital room and taught me exercises and breathing techniques and suddenly the pain faded.  I was literally able to stand up and walk around again.  I was able to lie down and sleep, I was able to do stuff again.  Nobody could believe it nor could they understand it, not even the doctors.  The doctors believed that it had something to do with their stupid medicine, but my family and I knew better.  Between the disciple and my family's support, my hope and motivation was restored.  My family visited me like crazy.  Not a day went by where I didn't have at least five visitors.  Even distant family members that I was not very close with came to see me and give me their support.

And so once the doctors saw how much I had recovered, they felt I could go home again.  So now I'm home.  I've been doing all the monks exercises everyday and now there is no pain.  It's virtually gone.  I have yet to get another scan but I know that the tumour has faded, I can feel it.  It's true what they say I guess, a powerful mind can overcome anything.  I guess that's how Lance Armstrong beat this thing, and that's how I'm going to beat it.  I know now that I'm not going to die.  I REFUSE TO DIE.  I feel like this is no longer a fight, this is a war, and I have all the power and support of my family backing me up.  I can't lose.

A so the battle continues.  My family still continues to visit me, and the disciple makes his best efforts to come see me despite the distance he has to travel just to get to my house.  He saw me today and he seemed truly happy to see that I've recovered so much.  He has a truly genuine soul.  He told me that sometime next week his master is visiting Toronto so I intend on paying the temple a visit.  I now have much faith in my culture.  I believe not because it was a last resort, but because now I've seen proof that it's real.  I feel it in my own body the difference it has made in such a short amount of time. 

Anyways now everything is on the right track.  I'll be fine.  I know that not many people are interested in reading my blog, but of all the posts I make, I hope that people read this one.  I want everyone to realize how important it is to have love and support, and hope and faith.  Never give up on anything.  There's always hope.  And I also I hope everyone reads this because I want everyone to know how much I love my family and how much I appreciate them.  That's for now I guess, hopefully I'll update again soon.

 

Side personal note:

In these recent events I went through a lot of personal reflection and discovery and one of the things I've come to realize was about Nate.  I may have over-mourned his death.  It was the first time I had ever experienced a death so close and I guess I mishandled it.  But now is the time to let go.  In Buddhism it is bad luck to leave pictures of the past with the living, so I've put away Nate's pictures.  It wasn't easy but it was something I had to accept.

 I'm sorry my good friend but I have to let you go now.  You will always be in my heart and I'm sure someday we'll meet again, but it won't be soon.  I'll beat this thing, for both of us.  So goodbye for now.

25 September

Hidden Track #16

Taz.Valentine:  What's wrong with you?
 
Kevin:  Nothing....
 
Taz.Valenine:  ...........
 
Kevin:  ..........My surgery is in about five hours, I can't sleep.
 
Taz.Valentine:  Hmph.  Scared?
 
Kevin:  Maybe
 
Taz.Valentine:  Maybe?
 
Kevin:  I guess I am scared.  I wouldn't tell anyone that of course.
 
Taz.Valentine:  Well, at least not until it's over right?
 
Kevin:  ......yeah....I guess
Kevin:  ......Could you go for me?
 
Taz.Valentine:  Hmph.  You know that's impossible.
 
Kevin:...haha......I geuss you're right.
 
Taz.Valentine:  I've been posting you're thoughts on the blog.  About the cancer and all.
 
Kevin:  Really?  Anyone read it?
 
Taz.Valentine:  Who knows.
 
Kevin:  ..........I won't die or anything right?
 
Taz.Valentine:  Probably not.  Are you that afraid?
 
Kevin:  I'm not sure.
 
Taz.Valentine:  I guess that's typical of you.
Taz.Valentine:  Would you like something done before you go in?  Just in case?  Destroy the world maybe?
 
Kevin:  Nah.....Kinda defeats the purpose.
 
Taz.Valentine:  Hmph.  You're call.
 
Kevin:  Well actually, there is one thing.  Wait for me on the other side.
 
Taz.Valentine:  I don't understand?
 
Kevin:  After it's over, I have something I need you to do.
 
Taz.Valentine:  Such as?
 
Kevin:  I'll let you know when we get there..........
 

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